Huntington's disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person's physical and mental abilities usually during their prime working years and has no cure. 41K Americans have HD, with 200,000+ living at risk, and 10% of all cases are children with Juvenile HD. There is no cure for this disease.

The Affiliate is recruiting board members for the Huntington's Disease Society of America (HDSA) - San Francisco Bay Area Affiliate, a local San Francisco nonprofit. The Affiliate is looking for energetic individuals with management skills to implement yearly strategic plan to heighten the awareness of Huntington's disease through fundraisers, developing relationships with local business, identifying potential local sponsors, outreach to educate healthcare professionals, staff for education days and support groups, working on social media campaigns and developing a yearly budget.

The Huntington's Disease Society of America (HDSA) San Francisco Bay Area Affiliate is a nonprofit dedicated to improving the lives of everyone affected by Huntington's disease (HD) & Juvenile HD. HDSA is 90% volunteer based and San Francisco Bay Area Affiliates is run by volunteers.

The Affiliate Board/Team's goals are to:

-Build an HD community-service organization.

-Support HD research and communicate its impact.

-Remove barriers to quality care.

-Serve as the premier communicator of HD information.

-Grow volunteer involvement.

-Operate in a fiscally responsible manner.

-Increase revenue to grow organizational capacity.

To accomplish these goals we need volunteers to help continously full fill our Mission: HDSA is dedicated to improve the lives of everyone affected by Huntington's disease and their families.

Job Types: Part-time, Temporary

Pay: From $0.01 per hour

Schedule:

• Day shift

COVID-19 considerations:
Because of COVID-19, the Affiliate's monthly meetings are on Zoom. When we return to normal, we will meet at Stanford Health in Palo Alto and UCSF Medical Center in San Francisco.

Application Question(s):

• Do you live in the greater San Francisco Bay Area?
• How much time per month, hours, can you give to the Affiliate?

Experience:

• management: 1 year (Preferred)

Work Location: Hybrid remote in San Francisco, CA

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